My name is Cirey Londiel, (keer-ay Lon-dee-ell), I’m 24 years old. I am a trained Costume Cutter and Constructor, Singer, Actor, and Stage Performer. I love all things creative and one of my newest ventures is here, writing to you.
I am positive for the TMEM43 gene prominent in Newfoundland, Canada. This gene was discovered to bring the onset of Arrythmogenic Right Ventricular Cardiomyopathy/Dysplasia, (ARVC/ARVD), that has haunted families for hundreds of years. I am currently asymptomatic, I may live to never experience the disorder, but my life has changed none-the-less.
This is an autobiographical journey of my experiences live to the day of the original results. The blogs were made to be shared with others whom they themselves or their loved ones may face. Whether it be this disorder or others, we’re supporting one another through our life changes.
Stay tuned for posts every Thursday.
Comments and Questions are surely welcome! 🙂
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