My name is Chelsea Alice, I’m 24 years old. I am a trained Costume Cutter and Constructor, Singer, Actor, and Stage Performer. I love all things creative and one of my newest ventures is here, writing to you.
I am positive for the TMEM43 gene prominent in Newfoundland, Canada. This gene was discovered to bring the onset of Arrythmogenic Right Ventricular Cardiomyopathy/Dysplasia, (ARVC/ARVD), that has haunted families for hundreds of years. I am currently asymptomatic, I hope to never experience the disorder, it’s all up to the odds now, but my life has changed none-the-less.
This is an autobiographical journey of my experiences live to the day of the original results. The blogs were made to be shared with others whom they themselves or their loved ones may face. Whether it be this disorder or others, we’re supporting one another through our life changes.
Comments and Questions are surely welcome! 🙂
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